Happy National Napping Day!

Roberta napping on National Nap Day

Isn't it perfect that today is National Napping Day?! The day after Daylight Savings Time seems a perfect day for it.

Also, it was perfect for me because I needed to get platelets and chemo and got to actually take a pretty good nap after not sleeping very well due to having bloody nose at 3am. I've been getting pretty nasty bloody noses almost daily, which has highlighted the urgency in figuring out the next steps for me to take.

Today, my oncologist surprised me by telling me that he and the allergist that Matt and I met with a few weeks ago had been talking about possible solutions for my treatment and care. The allergist went to a research conference last week and presented my case to some of his colleagues (who had also NEVER treated someone with the types of drug reactions that I have!).

However, they had HEARD of my type of reactions to drugs and concluded that a cytokine blocking drug combined with a drug that I had previously had a reaction to in the past may be the solution that I've been looking for. So, in a couple weeks or as soon as insurance approves all this, I will be trying Velcade and a cytokine blocking drug. This is a HUGE answer to prayer and I literally burst into tears when my oncologist gave me this option.

It has been a very stressful few weeks and this was totally what we were hoping for. We would totally appreciate your prayers that this works and gets me to the place where I am eligible for a Car-T Cell Clinical trial---or just miraculously cures me!! Thank you for all the love, prayers and support!! We would be a hot mess without all y'all.